How To Move A Safe

When I get in my car, my phone immediately connects to the Bluetooth. Usually, the audiobook I’ve been listening to begins to autoplay. But every now and then something glitches and I receive a random throwback to the iTunes library downloaded on my phone. There is not a lot of music on my phone—only around six hundred songs or so—but they range from Rachmaninoff concertos, musical theatre and TV soundtracks, through to my preferred genre; indie folk. Tonight, instead of my book, the last refrain of Walk Alone began to play.

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For the last two nights, I’ve been outside between 10 pm and midnight with my telescope, waiting. Trying to catch a glimpse of the green comet. But the last two nights have been too cloudy. Tonight, I am back at work, and afraid I will miss the once in 50,000-year event. It will disappear from view tomorrow night and I will again be here, at work. I am trying to not be too distressed about it. Except I am. I want to be one of the relatively few (comparatively) people on earth who get to see the comet with their own eyes. I’ve seen plenty of pictures. But that’s not enough. Armed with new terminology, astronomy would be considered one of my special interests.

I have begun making lists of memories, events, and behaviours that may be relevant to my assessment; you could say autism and its diagnostic criteria have also become a special interest.

Just as G’s CNS lymphoma became a special interest.

In three and a half weeks, he will have an MRI. It’s been a year since his last. I’d like to believe my anxiety about him experiencing a recurrence of the cancer will reduce if the scan is clear. But I’m almost positive it won’t. I want us to have a more normal life. I want us to be able to do things. (Do I?) I want to be able to take my mask off. (I don’t.) But it feels like I should say I want these things. That I should want these things.

One of the guys at work asked me when I would feel safe taking off my P2 mask. And I answered that I would only do it when G’s immune system returned to normal functioning.

In truth, I love this mask. I mean, I love not being sick with anything, that’s great. But what I love more is no-one seeing my face. No-one seeing my mouth move as I run through conversations in my mind. No-one seeing the faces I make when I sit quietly at my desk, processing information in my head. I love it and I never want to take it off.

I have told a few different friends, now, that I might be autistic. And almost all of them have responded with some version of “oh, yeah, that makes sense” which has been validating. So much so, that I have wondered whether seeking a formal (expensive!) diagnosis is necessary—but without it, I don’t feel that I have the right to call myself autistic. Just as without my diagnosis of anorexia, I never felt I could say I had an eating disorder. I fluctuate in my thinking; between not wanting to pathologise the myriad of human behaviour styles and experiences but also in wanting validation that my lack of ability to communicate easily has impacted my life and I’m only now starting to understand why: That there’s not anything wrong with me (though people might say there is) but that I probably just process the world and everything in it differently to others.

What I wonder the most, though, is how I have been able to identify and celebrate these differences in others, while completely missing (and misrepresenting) them in myself? There is a grief in that—in how hard I have been on myself for not understanding, for failing at relationships and communication—that will take time to process.

A few years ago, in the middle of a Sunday afternoon, G was in the family room on his bike trainer about to start a three-hour virtual race on Zwift. He was warming up, pedalling slowly, as the competitors gathered at the on-screen starting line.

“Can we move the safe?” I asked him, having wandered out from our bedroom.

I’d been reorganising our ensuite (master) bathroom and on the floor in a weird little alcove that housed the electrical switchboard was a small safe. The alcove was large enough for a set of shelves where we could store the towels and toilet paper and I wanted to put the safe in the walk-in robe so the space was useable.

He fiddled with his heart rate monitor, glancing occasionally at the race timer countdown on the screen. “Sure.”

I’d already measured the recess and found a set of shelves online that were in stock at a local budget hardware department store that would fit in the space. He would be busy on the bike for hours, enough time for me to run out, buy and build the shelves, install them and clean up. It was perfect.

I went back into the bathroom, pleased I could progress with my project, and began emptying the contents of the safe into a shoebox. Once I had everything out, I attempted to lift the safe but couldn’t. I noticed the problem immediately. It was bolted to the floor. I unscrewed the nuts from the inside of the safe and popped them in the shoebox with everything else.

Again, I tried to lift the safe, and while I could now raise it off the ground, I could not remove it from the alcove. The alcove had a small lip that wrapped approximately a quarter of an inch across the front of the safe, making it so tight that I could not tilt or turn the safe in such a way as to remove it from the space. I marched back into the family room.

“You said we could move the safe!!!” I said, loudly (and completely unaware).

“Yeah, you can,” he replied panting and puffing, the race now in full swing, “do whatever you want with it, it doesn’t worry me.”

“I can’t!” I said, even more loudly than before. “I can lift it, move it up and down, but it doesn’t come out of the alcove. Why did you say we could move it if we can’t actually move it?”

The conversation disintegrated. He was pedalling, racing, and through gasps and huffs, said he was done discussing it. He didn’t want to talk about it while he was trying to race. I didn’t want to do anything except talk about it. I wanted it resolved, and I wanted it resolved now. I felt betrayed. I did not understand why he would say I could move the safe, if I could not, in fact, move it.

I marched back into the bedroom and unleashed my anger in a text to a friend. Before her reply had come through, I already knew what I had to do. I had been using a tool for a few years–a process called “The Work” by Byron Katie. And I began the Judge Your Neighbour worksheet.

By the end of the worksheet, I had calmed.

G has not, nor will ever, intentionally hurt me. He has, on occasion, hurt me accidentally but I know these instances are exactly that; accidental.

And in that same way, by working through the questions Byron Katie has you ask yourself in The Work, I realised that we had been discussing two different questions.

My original question was “can we move the safe?” but what I actually meant was “is it physically possible to move the safe?”

He answered “sure.” An affirmative.

Because the question he heard when I asked “can we move the safe?” was “do you mind if we move the safe?”

One question; two very different interpretations.

That was why I became so distressed when I was unable to move the safe; because I had understood that he said “sure” to my indirect question of “is it physically possible to move the safe?” meaning that when it wasn’t possible, I felt he’d lied.

When he got off the bike some hours later, I explained all of this to him, what I’d worked through and what I believe had happened with our communication. Since then, when we find ourselves in a sticky confusing communication situation, we often look at each other and ask, “are we trying to move a safe?”

And then we start over and clarify exactly what it is we are trying to communicate. It doesn’t solve everything but it has helped having a shorthand signal to suggest we might not be looking at things from the same frame of reference.

I am not sure exactly what G thinks of it all—this autism thing. He says he doesn’t care, that it doesn’t change anything. That I am who I am and he loves me. And that if I am autistic, then that is part of what makes me, me. Of course, it shouldn’t change anything. But I still worry it could. Studies have shown that in cases of serious medical illness there is a significant gender disparity in the rates of separation and divorce (partner abandonment) if the woman within a heteronormative relationship becomes ill. Partner abandonment also occurs in instances of chronic illness. Because caring for a partner with a significant or chronic illness can be exhausting and debilitating. And while autism is not the same as a significant medical or chronic illness, and while I have mostly adjusted to neurotypical ways of life and have found work-arounds for the areas I find difficult (no matter how ineffective or exhausting), it does feed into my anxiety that a formal diagnosis could change the way he sees me and our relationship.

I would like to believe it will make things better; that a more thorough understanding of myself can only improve how we relate, that it will help us both navigate conversations more effectively.

I would like to believe that it will help us move more safes.

Music Monday | Punching In A Dream – The Naked and Famous

For some reason, YouTube seems to be showing me a flashback of my playlist in 2010 as I search for music tonight. It’s almost impossible to fathom that eleven years have passed since I changed the course of my life. In early 2010, I began treatment for an eating disorder that had comforted me on and off for almost fifteen years. I left a marriage that was nominal only; my husband far more interested in women inside his computer. I had no idea what I was doing. And I was so ill, there was no guarantee I’d live to see the end of the year. So eleven years feels like some sort of achievement.

In December last year, I hit a personal record for the longest time living in the same house. At the end of May this year, I’ll reach another milestone–seven years with my beloved–and not one “break” or break-up. These things may seem trivial but when our future–indeed, our present–has felt as precarious as it has in the last eight months, they are my touchstones. So tonight I’m remembering the woman from 2010 who was brave enough to seek help, brave enough to leave, and brave enough to live. And I’m saying thank you. These songs are for you.

Songwriters: Aaron Short / Alisa Xayalith / Thom Powers
Punching in a Dream lyrics © Sony/ATV Music Publishing LLC

And, a bonus song!

Songwriters: Aaron Short / Alisa Xayalith / Thom Powers
Young Blood lyrics © Sony/ATV Music Publishing LLC

OK, two bonus songs!

Songwriters: Oliver Sim / Baria Qureshi / Jamie Smith / Romy Croft
Crystalised lyrics © Universal Music Publishing Ltd., Universal-polygrm Intl Pub Obo Universal Music Pub. Ltd.

WIP (Work in Progress)

A few years ago, I sat down to write a book. And I did it. I wrote “the end” and everything. Now, I am editing that manuscript, my WIP. Which sounds like I’m close to finished. But a terrible truth in writing is that you can finish a draft (or several) and never be finished editing. I could probably drag it out for several more years if I wanted to.

The reason I’m not finished, though, is because the story has changed since I started. As it does. With understanding. Acceptance. Experience. Perspective.

But I’ve set my intentions for 2020. And while I won’t reveal all of them, one of them is to finish finish the book. Finish amending. Finish editing. Finish changing the story. Not because my memory of it won’t continue to shift but because it no longer belongs to me.

As we approach the end of the decade the customary comparisons are surfacing. The way I live my life is completely different. So is the way I love. But the deeper shadow parts of myself still lurk in dark corners, waiting for an opportunity. In 2010, my eating disorder had such a hold over me, the doctors didn’t think I’d see the end of the year, much less the decade. Yet here I am.

I once thought that if I wasn’t different at the end of all this, I wouldn’t be better. And while much has changed in the last ten years, plenty hasn’t. Who I am at my essence is entirely the same. Some days, I’m not sure what that makes me.

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It’s impossible to tell by looking at someone how they are feeling. The picture on the left was taken in 2010, eight months into recovery. I had been re-feeding and gained quite a lot of weight, almost 25 pounds. The picture on the right…? March 2019. I weighed quite a bit more than I did in 2010 and had been back in treatment for three months. I’m still in treatment now. Perhaps this fight will always be a work in progress.

But the story of the last ten years no longer lives in me. And next year, ten years after I almost died, I will let it go entirely.

Music Monday | Last Goodbye – Jeff Buckley

By the time this song was put onto a mix tape for me, Jeff Buckley had already been dead for two years. He was only 30 when, late one night in May 1997, he waded into the Mississippi River and drowned while going for a spontaneous swim. His body was found a few days later, upstream in Memphis.

As 2019 draws to a close, I’ve been watching the rounds of photos comparing people’s current self to their self from the beginning of the decade. In late 2009, I had just turned 31 but was severely entrenched in anorexia and yet to choose recovery. I didn’t believe I’d see the end of year, much less the end of a new decade. By the end of 2010, I was attempting recovery. Cautiously, with only a little hope.

Life has shifted many times over the past 10 years. Many things have changed but unfortunately, some have not. I’m in treatment again and have been for a year. It’s 25 years since Jeff Buckley released this song, a year after I first developed anorexia. But this time, I’m hoping that with the right treatment, I can say the Last Goodbye.

Nostalgia

And in the distance
As barren hills are touched by black-tipped fingers
The fading light reminisces about the days it lingered
Over pots of tea with toast
Whispering sweet nothings to its only ghost.
Then the moon rolls across the inky sky
With a gut full of ache and his upside down smile
And he stops to rest in the furthest corner
Heaves in gasps as the solitary mourner
Closes his eyes just for a minute and
Imagines the days when he was thinner.

January 2013

Tribute

Warning: this post contains gratuitous Mary Oliver references and poems.

Wild Geese

You do not have to be good.
You do not have to walk on your knees
for a hundred miles through the desert repenting.
You only have to let the soft animal of your body
love what it loves.
Tell me about despair, yours, and I will tell you mine.
Meanwhile the world goes on.
Meanwhile the sun and the clear pebbles of the rain
are moving across the landscapes,
over the prairies and the deep trees,
the mountains and the rivers.
Meanwhile the wild geese, high in the clean blue air,
are heading home again.
Whoever you are, no matter how lonely,
the world offers itself to your imagination,
calls to you like the wild geese, harsh and exciting
over and over announcing your place
in the family of things.

Mary Oliver

Earlier this week, I posted two pictures on Instagram as part of the #10yearchallenge that is making its way around the interwebs. In the caption, I mentioned that I haven’t posted a selfie in a while because all I see are the same tired, empty eyes and the same strained smile as 10 years ago.

I had forgotten what it felt like to be this depressed. How nothing feels like anything and everything feels like nothing.

The difference, I said, between the two women was that one of them — thirty-year-old me — didn’t know she’d survive the depression she was in. And she didn’t want to. Forty-year-old me, on the other hand, knows that she can survive anything, and she will.

But I left something out. Something critical. There is also another major difference. Forty-year-old me has support that thirty-year-old me never had.

In late May 2014, I met G at a work conference. I flew out for the USA at the end of that week and, for the six weeks I was away, we somehow managed to find up to five hours a day to Skype. At one stage, while we were chatting, I was in a library, looking for a book of poetry.

“Poetry?” he repeated, as if I’d spoken another language (and perhaps I had).

“Yes,” I said. “Mary Oliver.”

I found what I was looking for and sent him a picture of the page. It was The Uses of Sorrow.

The Uses of Sorrow
(In my sleep I dreamed this poem)

Someone I loved once gave me
a box full of darkness.

It took me years to understand
that this, too, was a gift.

Mary Oliver

When I arrived back from my holiday, instead of going home to Sydney, I jumped on a flight to Melbourne. We needed to know if this thing we had developed and nurtured was Real. True. Lasting.

Picking me up at the airport, he gave me two gifts; a set of pens from my favourite stationery store, and a copy of Thirst by Mary Oliver, containing the poem I’d been searching for.

I Did Think, Let’s Go About This Slowly

I did think, let’s go about this slowly.
This is important. This should take
some really deep thought. We should take
small thoughtful steps.

But, bless us, we didn’t.

Mary Oliver

Mary Oliver died this week. She was 83. I cannot remember how I first came across her; which poem it was that struck me, in all the ways her poems have struck me since. But I have a number of her books, and read them when I need reminding how to be human.

Poets, I find, know this intrinsically. And I am still learning – how to be a poet, and how to be a human. Because being human; being gentle, kind, loving, compassionate, and patient in this world is hard. Knowing death comes for us all is hard. Feeling dark things is hard.

When Death Comes

When death comes like the hungry bear in autumn;
when death comes and takes all the bright coins from his purse to buy me,
and snaps the purse shut;
when death comes like the measle-pox
when death comes like an iceberg between the shoulder blades,
I want to step through the door full of curiosity, wondering:
what is it going to be like, that cottage of darkness?
And therefore I look upon everything
as a brotherhood and a sisterhood,
and I look upon time as no more than an idea,
and I consider eternity as another possibility,
and I think of each life as a flower, as common
as a field daisy, and as singular,
and each name a comfortable music in the mouth,
tending, as all music does, toward silence,
and each body a lion of courage, and something
precious to the earth.
When it’s over, I want to say all my life
I was a bride married to amazement.
I was the bridegroom, taking the world into my arms.
When it’s over, I don’t want to wonder
if I have made of my life something particular, and real.
I don’t want to find myself sighing and frightened,
or full of argument.
I don’t want to end up simply having visited this world.

Mary Oliver

Although Mary Oliver won the Pulitzer Prize for poetry in 1984, the National Book Award in 1995, wrote 15 books of poetry and essays and was described by the New York times as America’s best-selling poet, she was still largely criticised as being too simplistic, too accessible with her plain verse and lack of typographical gimmicks.

As if that’s a thing.

Where most people find poetry confusing and convoluted, never fully grasping what the poet is trying to say, Mary Oliver used the natural world, interior revelations and small, daily observances to reach the reader. In a radio interview, she said that “poetry wishes for a community”. She wanted her words to find us.

Tonight, G found me struggling with anxiety. It was a state I’d hoped he’d never see me in. Not there. Not like that. And while it must have been a shock for him, his compassion and gentleness in the face of it made all the difference. He doesn’t yet know how much he helped.

There are things other people can do for me right now, and there are things only I can do for myself.

The Journey

One day you finally knew
what you had to do, and began,
though the voices around you
kept shouting
their bad advice–
though the whole house
began to tremble
and you felt the old tug
at your ankles.
“Mend my life!”
each voice cried.
But you didn’t stop.
You knew what you had to do,
though the wind pried
with its stiff fingers
at the very foundations,
though their melancholy
was terrible.
It was already late
enough, and a wild night,
and the road full of fallen
branches and stones.
But little by little,
as you left their voices behind,
the stars began to burn
through the sheets of clouds,
and there was a new voice
which you slowly
recognized as your own,
that kept you company
as you strode deeper and deeper
into the world,
determined to do
the only thing you could do–
determined to save
the only life you could save.

Mary Oliver

It is fair to say that Mary Oliver, much like Leonard Cohen, has shown me how to live. Her words speak to you directly, straightforwardly, kindly and earnestly.

In sixty-nine days, G and I will stand in front of our friends, say some lovely words to each other and commit to continue to nurture this incredible relationship. We both know what it is to be betrayed and it makes us all the more grateful for second chances, love, and joy.

Don’t Hesitate

If you suddenly and unexpectedly feel joy, don’t hesitate. Give in to it. There are plenty of lives and whole towns destroyed or about to be. We are not wise, and not very often kind. And much can never be redeemed. Still life has some possibility left. Perhaps this is its way of fighting back, that sometimes something happened better than all the riches or power in the world. It could be anything, but very likely you notice it in the instant when love begins. Anyway, that’s often the case. Anyway, whatever it is, don’t be afraid of its plenty. Joy is not made to be a crumb.

Mary Oliver

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The End: What To Do When You Finish Writing A Book

Today I wrote two little words I wasn’t expecting to write until tomorrow. And yet, here we are. At this point.

My feet are tingling like they do when you have pins and needles, numb, as if you’ve been sitting awkwardly cutting off your circulation, but in that sweet spot, before the blood rushes back into the capillaries and it starts to sting.

The cells, the atoms in my cells, are vibrating with energy. The energy of having finished. It is a gentle excitement. Soft. Like the way you realise you are recovered. After the fact. You do not notice it at first because recovery, like writing, feels like a slog. Every step is an effort. You wade through concrete. You make progress. And you don’t. There is resistance. The task seems overwhelming and you pause at various points to take a breath. To rest. There is no ticker-tape parade upon success. No party. There might have been, if you’d noticed it at the time. But even as you were thinking your last disordered thought, even as you were writing your final sentence, you didn’t know. And then you did.

So what do you do when you finish writing a book?

  1. You write the end
  2. You drink cider in the sunshine with a friend
  3. You buy yourself some flowers
  4. You go for a run
  5. You make dinner for the family
  6. You water your plants
  7. You hug your partner
  8. You feed the cat
  9. You write a blog post
  10. You begin again, a new story

I have been finished with the story I’ve written for longer than I’ve been writing it. Soon, lovely readers, I will hand it over to you.