How To Move A Safe

When I get in my car, my phone immediately connects to the Bluetooth. Usually, the audiobook I’ve been listening to begins to autoplay. But every now and then something glitches and I receive a random throwback to the iTunes library downloaded on my phone. There is not a lot of music on my phone—only around six hundred songs or so—but they range from Rachmaninoff concertos, musical theatre and TV soundtracks, through to my preferred genre; indie folk. Tonight, instead of my book, the last refrain of Walk Alone began to play.

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For the last two nights, I’ve been outside between 10 pm and midnight with my telescope, waiting. Trying to catch a glimpse of the green comet. But the last two nights have been too cloudy. Tonight, I am back at work, and afraid I will miss the once in 50,000-year event. It will disappear from view tomorrow night and I will again be here, at work. I am trying to not be too distressed about it. Except I am. I want to be one of the relatively few (comparatively) people on earth who get to see the comet with their own eyes. I’ve seen plenty of pictures. But that’s not enough. Armed with new terminology, astronomy would be considered one of my special interests.

I have begun making lists of memories, events, and behaviours that may be relevant to my assessment; you could say autism and its diagnostic criteria have also become a special interest.

Just as G’s CNS lymphoma became a special interest.

In three and a half weeks, he will have an MRI. It’s been a year since his last. I’d like to believe my anxiety about him experiencing a recurrence of the cancer will reduce if the scan is clear. But I’m almost positive it won’t. I want us to have a more normal life. I want us to be able to do things. (Do I?) I want to be able to take my mask off. (I don’t.) But it feels like I should say I want these things. That I should want these things.

One of the guys at work asked me when I would feel safe taking off my P2 mask. And I answered that I would only do it when G’s immune system returned to normal functioning.

In truth, I love this mask. I mean, I love not being sick with anything, that’s great. But what I love more is no-one seeing my face. No-one seeing my mouth move as I run through conversations in my mind. No-one seeing the faces I make when I sit quietly at my desk, processing information in my head. I love it and I never want to take it off.

I have told a few different friends, now, that I might be autistic. And almost all of them have responded with some version of “oh, yeah, that makes sense” which has been validating. So much so, that I have wondered whether seeking a formal (expensive!) diagnosis is necessary—but without it, I don’t feel that I have the right to call myself autistic. Just as without my diagnosis of anorexia, I never felt I could say I had an eating disorder. I fluctuate in my thinking; between not wanting to pathologise the myriad of human behaviour styles and experiences but also in wanting validation that my lack of ability to communicate easily has impacted my life and I’m only now starting to understand why: That there’s not anything wrong with me (though people might say there is) but that I probably just process the world and everything in it differently to others.

What I wonder the most, though, is how I have been able to identify and celebrate these differences in others, while completely missing (and misrepresenting) them in myself? There is a grief in that—in how hard I have been on myself for not understanding, for failing at relationships and communication—that will take time to process.

A few years ago, in the middle of a Sunday afternoon, G was in the family room on his bike trainer about to start a three-hour virtual race on Zwift. He was warming up, pedalling slowly, as the competitors gathered at the on-screen starting line.

“Can we move the safe?” I asked him, having wandered out from our bedroom.

I’d been reorganising our ensuite (master) bathroom and on the floor in a weird little alcove that housed the electrical switchboard was a small safe. The alcove was large enough for a set of shelves where we could store the towels and toilet paper and I wanted to put the safe in the walk-in robe so the space was useable.

He fiddled with his heart rate monitor, glancing occasionally at the race timer countdown on the screen. “Sure.”

I’d already measured the recess and found a set of shelves online that were in stock at a local budget hardware department store that would fit in the space. He would be busy on the bike for hours, enough time for me to run out, buy and build the shelves, install them and clean up. It was perfect.

I went back into the bathroom, pleased I could progress with my project, and began emptying the contents of the safe into a shoebox. Once I had everything out, I attempted to lift the safe but couldn’t. I noticed the problem immediately. It was bolted to the floor. I unscrewed the nuts from the inside of the safe and popped them in the shoebox with everything else.

Again, I tried to lift the safe, and while I could now raise it off the ground, I could not remove it from the alcove. The alcove had a small lip that wrapped approximately a quarter of an inch across the front of the safe, making it so tight that I could not tilt or turn the safe in such a way as to remove it from the space. I marched back into the family room.

“You said we could move the safe!!!” I said, loudly (and completely unaware).

“Yeah, you can,” he replied panting and puffing, the race now in full swing, “do whatever you want with it, it doesn’t worry me.”

“I can’t!” I said, even more loudly than before. “I can lift it, move it up and down, but it doesn’t come out of the alcove. Why did you say we could move it if we can’t actually move it?”

The conversation disintegrated. He was pedalling, racing, and through gasps and huffs, said he was done discussing it. He didn’t want to talk about it while he was trying to race. I didn’t want to do anything except talk about it. I wanted it resolved, and I wanted it resolved now. I felt betrayed. I did not understand why he would say I could move the safe, if I could not, in fact, move it.

I marched back into the bedroom and unleashed my anger in a text to a friend. Before her reply had come through, I already knew what I had to do. I had been using a tool for a few years–a process called “The Work” by Byron Katie. And I began the Judge Your Neighbour worksheet.

By the end of the worksheet, I had calmed.

G has not, nor will ever, intentionally hurt me. He has, on occasion, hurt me accidentally but I know these instances are exactly that; accidental.

And in that same way, by working through the questions Byron Katie has you ask yourself in The Work, I realised that we had been discussing two different questions.

My original question was “can we move the safe?” but what I actually meant was “is it physically possible to move the safe?”

He answered “sure.” An affirmative.

Because the question he heard when I asked “can we move the safe?” was “do you mind if we move the safe?”

One question; two very different interpretations.

That was why I became so distressed when I was unable to move the safe; because I had understood that he said “sure” to my indirect question of “is it physically possible to move the safe?” meaning that when it wasn’t possible, I felt he’d lied.

When he got off the bike some hours later, I explained all of this to him, what I’d worked through and what I believe had happened with our communication. Since then, when we find ourselves in a sticky confusing communication situation, we often look at each other and ask, “are we trying to move a safe?”

And then we start over and clarify exactly what it is we are trying to communicate. It doesn’t solve everything but it has helped having a shorthand signal to suggest we might not be looking at things from the same frame of reference.

I am not sure exactly what G thinks of it all—this autism thing. He says he doesn’t care, that it doesn’t change anything. That I am who I am and he loves me. And that if I am autistic, then that is part of what makes me, me. Of course, it shouldn’t change anything. But I still worry it could. Studies have shown that in cases of serious medical illness there is a significant gender disparity in the rates of separation and divorce (partner abandonment) if the woman within a heteronormative relationship becomes ill. Partner abandonment also occurs in instances of chronic illness. Because caring for a partner with a significant or chronic illness can be exhausting and debilitating. And while autism is not the same as a significant medical or chronic illness, and while I have mostly adjusted to neurotypical ways of life and have found work-arounds for the areas I find difficult (no matter how ineffective or exhausting), it does feed into my anxiety that a formal diagnosis could change the way he sees me and our relationship.

I would like to believe it will make things better; that a more thorough understanding of myself can only improve how we relate, that it will help us both navigate conversations more effectively.

I would like to believe that it will help us move more safes.

Music Monday | Punching In A Dream – The Naked and Famous

For some reason, YouTube seems to be showing me a flashback of my playlist in 2010 as I search for music tonight. It’s almost impossible to fathom that eleven years have passed since I changed the course of my life. In early 2010, I began treatment for an eating disorder that had comforted me on and off for almost fifteen years. I left a marriage that was nominal only; my husband far more interested in women inside his computer. I had no idea what I was doing. And I was so ill, there was no guarantee I’d live to see the end of the year. So eleven years feels like some sort of achievement.

In December last year, I hit a personal record for the longest time living in the same house. At the end of May this year, I’ll reach another milestone–seven years with my beloved–and not one “break” or break-up. These things may seem trivial but when our future–indeed, our present–has felt as precarious as it has in the last eight months, they are my touchstones. So tonight I’m remembering the woman from 2010 who was brave enough to seek help, brave enough to leave, and brave enough to live. And I’m saying thank you. These songs are for you.

Songwriters: Aaron Short / Alisa Xayalith / Thom Powers
Punching in a Dream lyrics © Sony/ATV Music Publishing LLC

And, a bonus song!

Songwriters: Aaron Short / Alisa Xayalith / Thom Powers
Young Blood lyrics © Sony/ATV Music Publishing LLC

OK, two bonus songs!

Songwriters: Oliver Sim / Baria Qureshi / Jamie Smith / Romy Croft
Crystalised lyrics © Universal Music Publishing Ltd., Universal-polygrm Intl Pub Obo Universal Music Pub. Ltd.

WIP (Work in Progress)

A few years ago, I sat down to write a book. And I did it. I wrote “the end” and everything. Now, I am editing that manuscript, my WIP. Which sounds like I’m close to finished. But a terrible truth in writing is that you can finish a draft (or several) and never be finished editing. I could probably drag it out for several more years if I wanted to.

The reason I’m not finished, though, is because the story has changed since I started. As it does. With understanding. Acceptance. Experience. Perspective.

But I’ve set my intentions for 2020. And while I won’t reveal all of them, one of them is to finish finish the book. Finish amending. Finish editing. Finish changing the story. Not because my memory of it won’t continue to shift but because it no longer belongs to me.

As we approach the end of the decade the customary comparisons are surfacing. The way I live my life is completely different. So is the way I love. But the deeper shadow parts of myself still lurk in dark corners, waiting for an opportunity. In 2010, my eating disorder had such a hold over me, the doctors didn’t think I’d see the end of the year, much less the decade. Yet here I am.

I once thought that if I wasn’t different at the end of all this, I wouldn’t be better. And while much has changed in the last ten years, plenty hasn’t. Who I am at my essence is entirely the same. Some days, I’m not sure what that makes me.

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It’s impossible to tell by looking at someone how they are feeling. The picture on the left was taken in 2010, eight months into recovery. I had been re-feeding and gained quite a lot of weight, almost 25 pounds. The picture on the right…? March 2019. I weighed quite a bit more than I did in 2010 and had been back in treatment for three months. I’m still in treatment now. Perhaps this fight will always be a work in progress.

But the story of the last ten years no longer lives in me. And next year, ten years after I almost died, I will let it go entirely.

Music Monday | Last Goodbye – Jeff Buckley

By the time this song was put onto a mix tape for me, Jeff Buckley had already been dead for two years. He was only 30 when, late one night in May 1997, he waded into the Mississippi River and drowned while going for a spontaneous swim. His body was found a few days later, upstream in Memphis.

As 2019 draws to a close, I’ve been watching the rounds of photos comparing people’s current self to their self from the beginning of the decade. In late 2009, I had just turned 31 but was severely entrenched in anorexia and yet to choose recovery. I didn’t believe I’d see the end of year, much less the end of a new decade. By the end of 2010, I was attempting recovery. Cautiously, with only a little hope.

Life has shifted many times over the past 10 years. Many things have changed but unfortunately, some have not. I’m in treatment again and have been for a year. It’s 25 years since Jeff Buckley released this song, a year after I first developed anorexia. But this time, I’m hoping that with the right treatment, I can say the Last Goodbye.

The End: What To Do When You Finish Writing A Book

Today I wrote two little words I wasn’t expecting to write until tomorrow. And yet, here we are. At this point.

My feet are tingling like they do when you have pins and needles, numb, as if you’ve been sitting awkwardly cutting off your circulation, but in that sweet spot, before the blood rushes back into the capillaries and it starts to sting.

The cells, the atoms in my cells, are vibrating with energy. The energy of having finished. It is a gentle excitement. Soft. Like the way you realise you are recovered. After the fact. You do not notice it at first because recovery, like writing, feels like a slog. Every step is an effort. You wade through concrete. You make progress. And you don’t. There is resistance. The task seems overwhelming and you pause at various points to take a breath. To rest. There is no ticker-tape parade upon success. No party. There might have been, if you’d noticed it at the time. But even as you were thinking your last disordered thought, even as you were writing your final sentence, you didn’t know. And then you did.

So what do you do when you finish writing a book?

  1. You write the end
  2. You drink cider in the sunshine with a friend
  3. You buy yourself some flowers
  4. You go for a run
  5. You make dinner for the family
  6. You water your plants
  7. You hug your partner
  8. You feed the cat
  9. You write a blog post
  10. You begin again, a new story

I have been finished with the story I’ve written for longer than I’ve been writing it. Soon, lovely readers, I will hand it over to you.