On repeat, to sleep
Because I cannot write
Instead I scroll and scroll and scroll
To avoid thinking
To avoid feeling
Words want to write themselves
But if I let them
I will break
And I cannot collapse yet
I still have to disappear
On repeat, to sleep
Because I cannot write
Instead I scroll and scroll and scroll
To avoid thinking
To avoid feeling
Words want to write themselves
But if I let them
I will break
And I cannot collapse yet
I still have to disappear
I wrap myself into my quilt like a burrito. I’m sleeping on the couch which, while not overly comfortable, doesn’t induce the same anxiety as having an argument with myself about going to bed. Instead, when I become sleepy, I close Instagram, blow out the candles, turn off the salt lamp and roll over.
I am not sure why going to bed holds such angst for me but it always has. At least, until I met G. For the first time in my life, I looked forward to going to bed because I felt safe. Held. Loved. I try to replicate this feeling now while he’s not with me but the best I can do is to stay awake until it is impossible not to sleep.
In the last week, there has been another infection, two surgeries and blood counts that still aren’t following the predicted path. My OCD has fixated itself on his illness and now intrusive thoughts of blame drive all manner of compulsions, day and night. If I haven’t given him covid, I must have given him cancer.
Life is random and unfair, I tell others. Bad things happen to good people for no reason. And while I almost believe that is true, intrusive thoughts still swirl that this is somehow my fault. My punishment. For what exactly, I haven’t determined. It could be a range of things and my brain is providing plenty of options. As a result, my anxiety is out of control. Today I had a telehealth appointment with my GP who has recommended blood tests, an ECG to check my heart which has lingering issues from my years of being underweight due to anorexia, and some medication.
“This is the only prescription I will give you for this medication,” he tells me, “due to it having addictive properties. You must be sparing in your use but it will help with the panic attacks and anxiety. I will give you a second prescription for something that you can use long term but the effect won’t be noticeable for two to four weeks.”
It’s been seven years since I took medication for my mental health and while I suspect I need it, a new fear has surfaced during the pandemic and my husband’s illness which will likely prevent me from doing so; I cannot take any medication for fear of the masking of covid symptoms or because I may have a bad reaction requiring treatment. I will no longer even take paracetamol or ibuprofen, pain killers I have taken for years, especially when I have severe cramps during my period but now I am afraid they will mask the symptom of a fever and I will never know if I accidentally acquire covid. I will not take new tablets, not even vitamins, in case they cause some sort of reaction where I have to present to a hospital because the more places I go, the more likely I am to come into contact with someone with covid. My anxiety is pushing me towards never leaving my house again, unless it’s to travel to the hospital where my husband is having treatment. Home. Hospital. Home. Hospital. That is the extent of my world right now.
And all of it seems justified.
Around us, a pandemic rages, but new daily cases are dwindling under the Stage Four restrictions. A curfew is in place from 8pm until 5am. This means you must be at your home between these hours unless you are working (with a permit), seeking medical care, or providing care.
It is fifteen minutes until curfew as I pull into the underground garage of my temporary home. The rain spatters on my roof and windscreen as the GPS announces my arrival. Although I’ve driven the same twelve kilometres twenty times this month to and from the hospital where my husband is critically ill, I still use the GPS to keep me company. I cannot stomach music.
During the day, you may only leave your home to exercise (for one hour maximum), to shop for necessities (one person per household, for one hour maximum), to work (if you can’t work from home and have an applicable permit), to seek medical care, or for compassionate reasons. You must stay within five kilometres of your residence.
Due to the nature of my husband’s illness, I am allowed to visit, provided I maintain full self-isolation. I do not work. I do not exercise. I do not shop for necessities. Some incredible friends are doing this on my behalf followed by a contactless delivery drop to minimise my exposure to the outside world. Anything that arrives gets doused in Glen20 (Lysol), spends five days in quarantine in the spare room, and is soaped or disinfected further upon opening.
When you leave home, you must wear a face covering unless you have a lawful reason not to.
I wear two; a particulate filter mask beneath a surgical or cloth mask. I do not know if this is safer. I just know it feels safer.
I leave my home only to drive to the hospital and sit by a bed on the days they allow it.
On the other days, I disinfect the apartment from top to bottom. Again. Just in case. But no-one comes in. And I do not go out. I phone a friend. I pace. I try to shake it out. I cannot sit still long enough to read. I cannot sit still long enough to write.
The adrenaline bath inside my body turns every abnormal event to terror. Is that tickle in my throat because I haven’t drunk enough water, or is it covid? Is that weird, red colour on my toes because I’ve been been sitting on them squished up on the couch, or is it covid? Is that shortness of breath, panic and palpitations anxiety, or is it covid?
I’ve had two covid tests. Both negative. And I’ve not been anywhere except the hospital and the apartment in three and a half weeks. I do not have covid. But I still feel like I should have another test. Again. Perhaps one every day. Just in case.
My OCD thoughts and behaviours are out of control. Something I’d once managed has rewired itself in this pandemic, found a new obsession. Gifted me new compulsions. Now, personal safety (my previous OCD focus) and contamination are the same thing. Now, I do not want to leave the haven of the apartment, except for the hospital. Now, I want to disinfect the entire place, again, just in case.
The government keeps reminding us to stay home, soap and sanitise, wear a mask. How do I know where the line is between normal precautions and compulsions? How do I know when I’ve crossed it?
I don’t.
But I am learning to just be as I am, by grace and devotion to let go, to just let it be.
On a Tuesday because I was at a concert last night. But. Nothing to see here.
The radio is playing memories, not music. But in the end, I suppose they’re the same thing.
Sarah’s fragile, melodic voice settled low into the valley of the natural amphitheatre like the evening fog that was rolling in with the crowd. Continue reading
Hey, look you guys! I wrote a thing and someone published it!
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